Caregiving Series: Part 7 with BJ Miller
Our podcast is hosted on Spotify and Anchor.
Part of our ongoing series on caregiving, BJ Miller, Mettle Health founder, palliative care and hospice physician and author, leads a conversation on caregiving and what it entails to be a caregiver and answers questions from attendees.
Show Notes:
0:00 Introduction
4:09 Thinking about timing: caregiving for acute vs. chronic issues
6:31 Defining the ADLs: Activities of Daily Living and why they’re important to caregivers
9:57 How relationship dynamics change over time, thinking of yourself as a “caregiver”
12:08 Thinking about managing help and bringing in outside help, the importance of outside eyes on the situation
14:57 The importance of not doing, but just being with each-other: bearing witness
16:28 What it means to be an advocate: more than just a title
18:14 The difficulty of making decisions for another human being
21:22 What “self care” means for caregivers
24:10 What title does someone need in order to be in the room with the patient in all situations?
28:00 How can the primary caregiver keep up with updates for family and friends when overly tired?
32:54 Weighing options for caring for someone at home versus a facility
39:29 How to “let go” of the choices and care for a young adult who is dealing with serious illness?
44:18 Recommendations for how to get into a hospital with a loved one when you’re told you’re not allowed?
47:37 Navigating taking care of a parent and dealing with incontinence when the parent is uncomfortable with child doing those intimate tasks
52:47 How to navigate the period of survival window between scans and treatments
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