Patience and Patients with BJ Miller
Our podcast is hosted on Spotify and Anchor.
Dr. BJ Miller leads an informal and interactive conversation on being a patient.
A change in your “health” can feel like changes to yourself, begging the question: who am I now? Being a patient brings its own unique set of opportunities and challenges. You’re widely considered to be the one in need, but the truth is more complicated than that. Projection, attention, misunderstanding, infantilization, pity, all are commonly fielded when you’re the one in the vulnerable seat. Attendees share their own experiences, and BJ also addresses attendees questions on the topic.
Show Notes:
0:00 Introduction
2:00 Generalities of being a patient
2:35 Not handing yourself over to a doctor as a patient
3:30 The momentum of a hospital system
3:50 Importance of speaking up for yourself
4:30 Creating a patient/doctor partnership
5:35 Skil-set to being a patient
7:27 Watch out for hyper-vigilant mode
10:14 The myth of autonomy and independence
11:50 Asking for help
15:05 Asking for help, and understanding you may not get the response you expect
23:15 The reciprocity of care-giving and care-receiving between patients and caregivers
24:25 Letting go of the things you can’t control
25:22 The humility and grace of being a patient
25:50 What helps to create a space of relaxation
29:29 How can people in rural areas get more support?
34:30 How to advocate for patients as a clinician, at all moments, including hospice?
40:35 The identiy of “patient” vs. “person”, diminishing aspects of being labeled a “patient”
42:45 Defining patient for yourself
45:05 Importance of bearing witness as a caregiver or clinician
51:50 Suggestion for Caregivers and patients: Trauma Stewardship - https://traumastewardship.com/
52:35 Defining our core values and what’s most important to us
53:55 Using illness or changes in your health to reinvent yourself
55:07 Guidance on how to find a palliative care team?
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